Sorry I haven't been in touch for a while but in truth there hasn't been a lot to say and I thought that you might get bored of my idle chatter. Anyhow today was an important day as i finally heard back from the national committee that was reviewing my case to see whether a transplant could go ahead.
It has been an incredibly nerve racking wait as what seemed so positive a while ago when I was at Oxford became more and more of a doubt in my mind as time passed by. Its amazing how your mind can play tricks on you for no real reason.
Now I am waffling so I will get straight to the point. Thankfully I passed the committee stage and they gave the go ahead for the transplant. As usual with all these things there is a but. That but actually related to my stomach and not to my bowel. They are not sure whether I need a stomach transplant as well and therefore the committee has asked that two experts look at the histology of my stomach before I can go on the list. There are three possible answers.
1. There is no real problem with the stomach and therefore it does not need to be transplanted.
2. There is a problem and it does need to be transplanted.
3. There is a problem that is treatable and I would need to have that treatment before I could proceed with the transplant.
So whilst it is all positive its also a bit frustrating. However given that I would not go on the list until after Nathan's bar mitzvah I guess that waiting is not such a massive problem for me. I would just have liked it to be definitive and settled. Again on the positive side I do not need to go in front of the committee again and when they have the decision they simply send an email out to the committee and we go from there.
So i thought that it would be worth waiting to tell you the news rather than waffle on for a few days without much going on. I will keep you posted as to how things are going over the next few days and promise to stay in touch sooner.
take care
xx
Wednesday, 25 May 2011
Tuesday, 10 May 2011
10th May @ 12.25pm
After 30 years supporting the same club we finally have something to celebrate. I know that some of you won't care about football but having been an avid QPR fan for as long as i can remember we finally have something to smile about. Yes QPR have just got promoted to the Premier League 16 years after being relegated. Its nice to finally have something to cheer us up and how could I not blog about the good news.
On the health front there isn't much to write about. Life gets harder by the day but its only a few weeks now until I hopefully get the formal go ahead. I am not sure why I am so keyed up about that date because there would still be a few months to go until I actually get my surgery. Its a bit of a bizarre situation at the moment as we are really in limbo. I do find it very difficult to keep focused. Work has really dried up so my time has been taken up trying to do my sports therapy course. I have my first practicals this weekend so we will see if I have been learning the right way.
Trying to stay positive and focused is really what I am trying to do at present but it isn't easy. I haven't felt great the last few days but I suspect its going to be a bit of a hard slog.
Anyhow i just wanted to share my joy over QPR with you as I am sure that it will mean a great deal to you!!! Not!!!
Take care
x
On the health front there isn't much to write about. Life gets harder by the day but its only a few weeks now until I hopefully get the formal go ahead. I am not sure why I am so keyed up about that date because there would still be a few months to go until I actually get my surgery. Its a bit of a bizarre situation at the moment as we are really in limbo. I do find it very difficult to keep focused. Work has really dried up so my time has been taken up trying to do my sports therapy course. I have my first practicals this weekend so we will see if I have been learning the right way.
Trying to stay positive and focused is really what I am trying to do at present but it isn't easy. I haven't felt great the last few days but I suspect its going to be a bit of a hard slog.
Anyhow i just wanted to share my joy over QPR with you as I am sure that it will mean a great deal to you!!! Not!!!
Take care
x
Monday, 2 May 2011
2nd May @12.24pm
I know it's a bit silly but I have to blog how delighted I am that my team QPR have got promoted. See there is a light at the end of the tunnel and in all my 30 years of supporting the team its the first trophy that I have seen them win. At last my son can stop being laughed at for being a Ranger and he can join his friends in the Premier league - for how long who knows but its great for now.
Life on the health front hasn't changed much. I would say that each day gets a little harder but i just have to see it through. Its three weeks until I get the complete ok to have my transplant and I am sure that time will go quickly. You can't help though but constantly think about it. It is amazing how this surgery becomes all consuming.
As most of you also know my father in law is also very ill so its been a really tough few months. My wife is constantly shattered running from one place to another, she deserves to have happiness and hopefully our forthcoming bar mitzvah celebrations will be a welcome break from health issues.
Not a day goes past without me realising how lucky I am to have the support of all of you. Sorry if at times I am boring you to death with my transplant talk, I guess though its better than going on about my beloved QPR.
Take care
xx
Life on the health front hasn't changed much. I would say that each day gets a little harder but i just have to see it through. Its three weeks until I get the complete ok to have my transplant and I am sure that time will go quickly. You can't help though but constantly think about it. It is amazing how this surgery becomes all consuming.
As most of you also know my father in law is also very ill so its been a really tough few months. My wife is constantly shattered running from one place to another, she deserves to have happiness and hopefully our forthcoming bar mitzvah celebrations will be a welcome break from health issues.
Not a day goes past without me realising how lucky I am to have the support of all of you. Sorry if at times I am boring you to death with my transplant talk, I guess though its better than going on about my beloved QPR.
Take care
xx
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